10/17 NICU Day 55


Well…most of my post from yesterday apparently was wrong. I was mistaken and misunderstood. Olivia has her eye exam 10/20 so on Wednesday. Her ECHO will be Tuesday. I think some of that is not knowing what date or day it is! They all just run together right now.

So today Olivia did well. She did lose weight and was slow to gain weight the last few days. Some of that may have been because she wasn’t being fed last week and just reached full feeds yesterday. Tomorrow nutrition will be involved in rounds so that the team can work on a plan to help get her growth velocity back on track. 

There was a moment I was worried while holding her. Her oxygen saturation kept dropping. I couldn’t help it I just started to cry. I was so frustrated after her having such a good last few days. I don’t want any set backs. Fortunately the nurse noticed after several dips, that it was the oxygen probe acting up. Once changed everything was back to normal. I felt relieved but also felt dramatic. I think that sometimes I don’t realize I’m holding my breath waiting on the next bad day…I need to just really relax and enjoy every moment and celebrate the wins. 

Celebrating her wins…Her murmur is still much quieter and her breathing is wonderful. She’s tolerating long kangaroo times and is proving to be a very happy baby. 



I’m reminded every day that I need to remain in constant prayer. Not just for requests but for praises and thanksgiving. Although we are still praying that Olivia will avoid heart surgery and her PDA will close, and that her lungs will develop past the need for oxygen or CPAP, and that she grows strong and healthy…we are also thanking God for our sweet miracle. We are thankful for the nurses and doctors who are taking such great care of her. And also thankful for everyone who keeps us in their prayers and thoughts. 

Popular posts from this blog

Last Days of Summer

Image
Being in North Carolina provides some decently warm days well into the end of September and even part of October. We have been lucky enough to soak in a ton of sun during these last summer days. We started September off with an impromptu trip to the beach-just the three of us. It was so much fun being able to just pick up and leave. It wasn't long ago that we were tethered to oxygen lines and equipment.    We also spent many days at the local "water park" beating the heat and hanging out with her older cousin, Branson. Both babies love the outdoors. Olivia has gotten to a point that she knows when shoes are going on her feet-we are going outside. It's been a blessing to have such nice weather and so many nice parks close by. We will have to get really creative with activities once the weather starts to cool off! Disclaimer-no she cannot reach the peddles, but she likes to climb on the bike and be pushed around the yard. She's getting big but not that big yet!    M...
Read more

12/28 DISCHARGE DAY!

Image
  I think I’m still in shock that we are actually in the car…driving Olivia home! Of course I’m not driving-I’m just snapping all the pictures.  This is a huge appreciation post to all the staff at the NICU, friends, family, strangers, coworkers…people who prayed for us, advocated with us, listened, cried,  and laughed with us, held our hands through the difficult times, and celebrated the wins.   As we were wheeling through the halls…back tracking the way Kevin and I came speeding up over four months ago…so many emotions. When we arrived…Olivia was given  60% survival chance.  The day she was born that percent had jumped to 80%.  And here we are today…a living breathing miracle and proof of the power of God. This is not the birth story I hoped for, or the first four months of motherhood I envisioned-but I would never ever take back what I’ve gained. We are so thankful for Olivia!  Thank you to everyone again for support and prayer, kind words and...
Read more

8/23 Baby Girl's arrival

Image
 8:12 AM on Monday August 23 baby Olivia made her unexpected arrival into the world. She came into the world in a fury of fists and kicks and attempt at loud cries that surprised all the doctors being that she was only 24 weeks and 3 days gestation. Let me briefly begin with how we got here... August 19, Thursday, I started to notice very mild cramps midday. Being a first time momma I have my OB on speed dial. They scheduled an appointment for Friday and suggested I take it easy but continue to monitor everything. Nothing was intense or constant. No bleeding or abnormalities. I had been on my feet all day and very busy at work, I didn't think much of it either. I got home, pounded water, rested on the couch and everything subsided. The next morning while in the waiting room of the office my cramping came back out of no where. The midwife who evaluated me figured maybe I had an infection and had me prepped to check. Within minutes though, she had me get dressed and was preparin...
Read more